Ella Steinbeck
Chronic Illness/Medical Sherpa
Click "contact" for appointments.
I am now offering my experience and "Rolodex" to those who seek it. This is meant to be used as a consultation. This is in NO WAY medical advice. I am NOT a doctor. I am simply someone who has been sick for a VERY long time. Maybe everything that is wrong with me can help you!
I know what it is like to waste valuable time, energy, and finances trying to navigate an overwhelming system to find the right help. I can only offer my experience and contacts. I also have a "gift" for writing pointed letters to those who have denied us access to care or otherwise medically disappointed us- if you need help with that (I'm not a lawyer! BUT sometimes letters need to be written to get our frustration out, be understood, or some other reason...I post many of those letters on Instagram as well).
Appointments are limited because I don't have a lot of energy. I wish I could do more! I apologize.
I do not want money! I ask that you make a donation to a non-profit that benefits those who suffer from Lyme/EDS/chronic pain/chronic illness etc. If you prefer, you can donate to a foundation that helps fight to end child trafficking/exploitation. If you need ideas, I can send a list of appropriate foundations. Your donation receipt will be "proof of payment". A screen shot of payment, or a confirmation email, from your chosen foundation will suffice. I suggest contributing $60 or more per 45 minutes of phone consultation. I can only schedule 45 minutes at a time. I know being sick is expensive and money is tight. Do what is comfortable for you and what you deem "fair" for my time.
I strongly encourage and request that you make time to read my pieces on living with Lyme and Ehlers Danlos. And please also listen to the podcasts I have participated in -BEFORE we meet for an appointment. That way you have a full understanding of what I can offer and my medical history. You can make notes and a list of a questions.
When you contact me for an appointment I will send the links. After you have read/listened we can make a time for me to call you.
My Instagram is full of free information. I am an open book.
Diagnosed:
Classical-Like Type Ehlers-Danlos Syndrome TNXB Gene (hEDS), POTS, Arthritis, Fibromylagia, Lyme Disease, Bartonella, Convergence Insufficiency, Traumatic Brain Injury and 3 Concussions, I've been on Accutane 3 times, CPTSD, Hypervigilence, Anxiety, Panic, Depression, Interstitial Cystitis, Endometriosis, Adenomyosis, Mast Cell Activation Syndrome, Multiple Chemical Sensitivity Disorder, Aniscoria, Chronic Fatigue Syndrome
#mentalhealthawareness #spoonie #invisibledisability
"Nothing changes if NOTHING changes"
Writer, Ex-hairstylist to the 1%, Producer, Advocate, Taught English to Novice Monks in Thailand, Board Member for FRAME Foundation...I've also been known to do a little Life Coaching, Modeling, Acting, and Stand-up Comic-ing in the past.
I believe there should be more humanity in humans.
Living Life On The Couch... If you take chronic illness, mix it with good luck and then some bad luck...you'll get ME!
Ex disgruntled hair stylist to the rich and famous. Trained actress. Layers waiting to be peeled...
I once lived in Vegas. IT WAS FANTASTIC! I act, do stand -up comedy and LOVE writing! I have played the quirky bitter divorcee lead in the independent rom-com The Common Alligator , "Tracy" in Martin Scorsese's series Vinyl on HBO. A woman mourning her inability to have a child in Celebrity Ghost Stories, a "lover" in a French film, lead vampire in Night Life The Series, a psychologist in In Season, Juliette Lewis's double in Future Relic for Daniel Arsham, the "buttoned up" Mom in the pilot Getting In and just for fun... was a bikini girl in The Wolf Of Wall Street. I was on the cover of Time Magazine!
Height: 5’9” Hair: Brown Weight: 118lbs Eyes:Hazel
Film/TV/Web Role Director
Mikey Maria John Fortuna Finding Nora Dr. Cross Crystal Glass
Bae Or Bail Bride Ghoul Lauren Wohl (A&E)
Impractical Jokers Angry Woman TruTV
Vinyl Tracy (principal) Martin Scorsese (HBO)
Ned Rifle Bartender Hal Hartley
Celebrity Ghost Stories Mrs. Huestis (lead) Bio Channel
Living In Exile Grace (principal) Jim Mendrinos
America's Got Talent 2015 Self -Comic NBC
Sugar Inmate's Sister Rose Troche
Betel Jill Bixby Vincent Graziano
Night Life The TV Series Angeline (lead) BK Coposky
Dinner Is Served Fox Yekaterina Minskova
Tales of Amish Horror Zook wife Destination America
Getting In Nancy Preston(supporting) Sam Baden
The Common Alligator Elizabeth (lead) Meghan Magner
Twisted Tales Erika Showers (supporting) Ray Gootz
Twins Sophie and Sabine (lead) Marty Gotlieb
Bloody Slumber Party Rose (supporting) Larry Rosen
Anywhere But Here Belle Larry Rosen
In Season Dr. Josephine Bakker (lead) Albert Shivers
The Healer Shelly Berman Albert Shivers
Amour Et Turbulences Lover Alexandre Castagnetti
Flesh For The Beast Love Interest Carl Morano
Comedy Time TV Self Eric Hanson
Stand-Up/Improv/Sketch
America's Got Talent Season 10 NY Big Al’s (stand-up) NV
Comic Strip Live (stand-up) NY Bonkerz (feature stand-up)NV The Rio (opener) NV
Las Vegas Hilton (stand-up) NV Guilty Pleasures -Sketch And Improv Show NY
Women In Comedy Festival 2015 MA Ladies of Laughter 2014 NY
Gilda's (stand-up) NJ Bananas (stand-up) NJ
Commercials
Withings
Clorox
Paperless Post
Training:
T. Schrieber Studio Acting Techniques : SusanPilar
On Camera Acting: Peter Miner Vocal Production: Page Clements
Acting: Clyde Baldo Sit-com acting: Richard Kline
On camera hosting: Patricia Clark Improv: The PIT
Accent Training: Paul Liberti
Magazine covers
Time Magazine Oct.12, 2015 Breast Cancer issue
Special Skills: SCUBA, swimming, Cosmetology license (hair, skin and nails), driver’s license, stand-up comedy, worked on a pig farm and know all aspects of breeding, processing and feeding pigs; ballroom dancing, ballet, YogaFit certified, certified personal fitness trainer, sociology, taught English in Thailand.
On screen double for Juliette Lewis. Stand-in for Jaimie Alexander for Blind Spot NBC, Boston, Russian, Brooklyn/Bronx, Southern and Midwestern accents-Please ask for samples.
Local: NY, NV